The Many Faces Of Bleeding Disorders: United Together On World Hemophilia Day

You may have heard of hemophilia, but did you know that there are many other inherited bleeding disorders?

– Bleeding disorders can affect both males and females;
– von Willebrand disease is the most common bleeding disorder;
– Carriers of hemophilia can also experience bleeding complications;
– Women might not know they have a bleeding disorder until they experience complications with childbirth;
– Most people around the world with bleeding disorders do not have access to adequate diagnosis and treatment.

On World Hemophilia Day 2010, April 17, meet the many faces of bleeding disorders – united to achieve Treatment for All. Each year hemophilia organizations around the world celebrate World Hemophilia Day, increasing awareness of hemophilia and other bleeding disorders.

The World Federation of Hemophilia (WFH) will launch “The Many Faces of Bleeding Disorders” video podcast on World Hemophilia Day. This video podcast celebrates the whole bleeding disorders community – people with hemophilia and symptomatic carriers, males and females with von Willebrand disease, as well as rarer factor deficiencies, and inherited platelet disorders. It features the impact of these conditions through global patient perspectives and includes a call-to-action for access and improved patient standard of care.

“The goal of the World Federation of Hemophilia is that, one day, treatment will be available for all those with inherited bleeding disorders, regardless of where they live,” said Mark Skinner, WFH president. “Our vision of Treatment for All means expanding services beyond hemophilia.”

Visit wfh/whd for more information about World Hemophilia Day. The World Hemophilia Day website is supported by Bayer, Baxter, and Novo Nordisk. View “The Many Faces of Bleeding Disorders” video podcast, made possible with funding from Baxter Healthcare Corporation, at wfh/whd.

“The Many Faces of Bleeding Disorders” campaign is part of the WFH’s continuing efforts to improve care for people with inherited bleeding disorders around the world.

About hemophilia and other bleeding disorders

Hemophilia, von Willebrand disease, and other factor deficiencies are lifelong bleeding disorders that prevent blood from clotting properly. People with bleeding disorders do not have enough of a particular clotting factor, a protein in blood that controls bleeding, or it does not work properly. The severity of a person’s bleeding disorder usually depends on the amount of clotting factor that is missing or not working. People with hemophilia can experience uncontrolled internal bleeding that can result from a seemingly minor injury. Bleeding into joints and muscles causes severe pain and disability. Bleeding into major organs, such as the brain, can cause death.

Source
World Federation of Hemophilia

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